Hey Everypawdy, I sincerely apologize for this overdue update. It has been a brutal 6-7 months. I’m going to give a summary with the best part first! Purrkins is finally feeling better! He told me I better update the blog before we celebrate 5 YEARS ON THREE the 27th:)
Our New Chapter
Our new chapter has not been brutal! For humans, it has been highly stressful, anxiety-producing, depressing, exhausting. Constantly watching and worry. For Purrkins, it’s been exhausting, not feeling well, whisker twitching, a few focal seizures & an unstable hop. Purrkins being highly whacked, wondering why his favorite peeps keep putting this better-tasting medicine down his throat.
PHENOBARBITAL TOXIC LEVELS
Purrkins ended up not adjusting to the pheno dosage. Therefore Dr. R started to tweak his meds in February 13.13, and it continued as he told us in no uncertain terms he did not feel well, sleeping all the time, vomiting, not wanting to eat, he would not even get up to eat his meals. Lots of whisker twitching. His hop was concerning. I was looking at the QoL scale; we were scared to death! Dr. R had us come in for more bloodwork! This bloodwork revealed the pheno was in a toxic range, poisoning Purrkins.
Peak and Trough Blood levels-
Dr. R reduced Purrkins dosage to 12mg, and we returned in 2 weeks to recheck pheno levels. We went in for a double blood draw, a peak and trough level, which means going at 12 and 6:30 for Purrkins to be poked curbside. This shows her what the meds are doing in Purrkins body after his first dose and before his next dose. If the meds are in therapeutic range or in this case toxic. Recheck reveals Purrkins is STILL in toxic range.!!
This time she cut his dosage in half to 6.25 mg, and Purrkins rallied; he started to eat again and up to eat, asking to eat, playing you name it, a switch got flipped THANK HEAVENS & so far, no focal seizures on the lower dosage. Prayers this continues!
We returned for a double blood draw again after two weeks, and Purrkins is no longer in the toxic levels. PHEW
In my opinion, the dosage has been too high for Purrkins to have any life. It has been an awful six months of monitoring, watching, and anticipatory grief!
Good Mews, no spells (seizures) & QOL
To be able to update the blog with good Mews is a glorious day! Purrkins is happy to be himself. We would say he is 95% Purrkins on this dosage & NO seizures 🙌🏻🙌🏻🙌🏻! I’m NOT looking at that QOL list and worrying as I was. He is asking for food, up to eat his food, back to having some zoomies, playing. He has been outside in his tent to hunt the chipmunks and birdies. Back to his sun puddling and window seat and even allowed to venture out of our site a little;) I can sleep a little, but yes, I still hear anything and wake to make sure all is ok. This new chapter has taken a toll and getting used to for us all. I’m still not 100% comfy yet but, we have hope again.
Only time will tell what each day will bring; in the meantime, we are all GRATEFUL to have moved out of the toxic stage and to have our Purrkins back! Dr. R has us documenting a day in the life of Purrkins to help him better. I send her a monthly log. She is a gem!
We just tweaked his meds again to a tad lower 6.3 mg, and now we see how this goes. We have a recheck on the 20th. I get to go into the clinic with Purrkins for the first time! He can show me around;)
We are hoping to keep checking each day off with fewer meds & no seizures. I never want to see Purrkins go thru this again, Ugh my prayers are constant.
“Seizures are like Cancer”
Dr. Matt told us seizures are like cancer; they do whatever the bleep (he–) they want to do. I appreciate the honesty, but yeah, not what anyone wants to hear, but a need to know! Purrkins now gets acupuncture for seizures with his regular tune-ups for being a tripawd. Dr.Matt adds on a few different points.
I think the hardest thing with seizures is having zero control over the situation! Not being able to help Purrkins, watching Purrkins leave in his little eyes, wondering what comes next, having no idea what each day brings, will he have a seizure today? That’s the anxiety-provoking part. We are beyond thankful each day we see Purrkins be Purrkins! Hopefully one day we can close this chapter. BUT, if not, we are on a small dose, and Purrkins is doing well; he has a QOL, that’s what counts. We accept the now and keep moving forward,” a tick at a time.”
Hoppy/Happy 11th birthday
We celebrated the boy’s 11th bday a happy day! The boys got prizes and a little whip cream for their cake this year.
Next, we celebrate Purrkins 5 year ampuversary! Whoo-hoo! I was not sure we were going to get to our 5-year celebrations! We do not take a single day for granted!
Words of Wisdom “Take a tick at a time”!
Anyone here knows to savor every minute with our furry and human loved ones, and do our best to take each tick at a time! Sometimes that tick-tock of the clock is more than enough!
My Aunt Janice’s words of wisdom – ” take a tick at a time ” had a massive heart attack and died suddenly at home on June 25th. She is & will continue to be greatly missed by us all. I know she continues to be with us, helping us every day as she did in her earthly clothes. I will never forget her unyielding faith and wisdom. We Love & thank you, Janice, for all you have done for all of us! We will carry you in our hearts every day!
Some cute pics to close of the boys being brothers in the shared sun puddles;) Taking a tick at a time;)
Thanks, fur reading, loving & caring!
Loads of love and appreciation from all of us at Purrkins Palace.